Wednesday, August 26, 2009

Everyone, Meet My New Rheumy!

So I met Dr. Q today. He is fantastique! He spent an hour with me! AN HOUR!!! Who does that any more! He listened to my whole long story. He was dumbfounded that my old PCP didn't do any other bloodwork besides a Sed Rate & CRP when I went to him for all my symptoms (fluid on my joints, joint pain, joint swelling, extreme exhaustion) over the 2 & 1/2 year period.

We talked about the drug study that I'm doing and he seemed very impressed with my progress. He was curiuous about what my Sed Rate and CRP are now so he ordered some bloodwork. He is checking my Vitamin D level and thyroid to see about this exhaustion that keeps showing up. He's also checking liver functions and all that happy horse shit.

So needless to say, I am very eager to find out what my Sed Rate & CRP is. I'll let you know!

An ADK Anniversary

Last week marked the one-year anniversary of me finally finding out what the hell was wrong with me. To refesh, a doc in the ADK diagnosed me after my doc fell down on his job......for 2 years. It's been a long year and a difficult journey. Meds and pain and misery (oh my). But I feel like I have leveled out.

Last week we made our annual pilgrimage to the ADK. It was better than I had hoped. First and foremost, I got to spend a few days with a very old and dear friend and her family. Secondly, all the worries and wonders I had prior to going were unfounded.

Packing is like an olympic event in our house. We have to pack for 4.....OK, who am I kiding.....I have to pack for 4. Plus we have 2 large bins full of camping equipment plus we now have a canoe. Most stuff wasn't too difficult to pack and load.....Scott helped alot with that. My worry was how the hell was I going to lift my end of a 70 pound canoe and get it on and off my truck? Well, I was actually surprised that they only difficulty was that that thing is damn heavy! But Physically I was able to get it on the truck and I had no issues after. My friend's hubby helped Scott get it off when we got there. Thanks again Marty!

We tent-camp and haven't had an air-mattress in a few years.....ever since the mice made a snack out of the old one. I kept meaning to buy a new one but never seemed to get around to it. I really worried about sleeping on the ground this year. Was I going to be able to get up in the mornings? Would I be stiff? In pain? I am happy to say that I had no issues sleeping on ground. I really was surprised. I thought I was going to have to go to the nearest town and buy an air matteress. I hate setting up and taking down my tent. But even more, I hate the thought of possibly having to buy a camper some day in the near future. I always have to keep in mind if I even should be sleeping on the ground.....padded or not. This year I was able to stay camper-free.

Another worry was, would I even be able to do anything? We usually hike, canoe, walk, walk, hike, swim, shopping day in Lake Placid, etc. You get the point. We haven't hiked a mountain since we've had the kids. (I wanted to this year but didn't find a small enough one that my daughter may be able to do until the day we left.) We did a lot. I don't think we sat around one day. The easiest day was probably the day we canoed. Although I had to remain very conscious of how I held the paddles, it was surprisingly easy. I did have some muscle pain after but nothing more than a workout burn. Swimming was great. I was in the pond almost every day. And all the walking we did (which was my biggest worry) no problem.

So all in all, it was a great vacation. Honestly, the most difficult things for me were coming home (only because I would love to live there) and being away from my blender and juicer for a week. I can't wait to make my reservations for next year!

Tuesday, August 4, 2009

Stepping Up My Running Game

Today was a great day in so many aspects. Me and the kids went to my siser's house for some sun and swimming. My sister's fiance's daughter is here visiting and my niece was also there. My cousin Beth came over with her too kids and my grandmother brought my uncle's son.

It was great to see the kids play. I love watching my kids play. I love to see their immaginations come to life. They were playing one game in the pool that they made up and they decided that the winner was going to get to dress up Chris (my sister's fiance') to look like a girl.....right down to balloons and a bra.

I also love to watch them solve their own problems. Too often as adults we interfere where we shouldn't, not letting them become independent thinkers.

One of my favorite parts of the day was watching the kids interact with Christopher. Christopher is my cousin's nearly 3 year old son. He was diagnosed with autism a few months ago. I love to see him because I can see new things every time. Today he was having a ball with my son Connor. Connor was so protective of Chris. Whenever Chris wanted to go on the slide, Connor followed him up the ladder and encouraged him on. Then he ran around to the bottom of the slide to catch him when he came down. He made sure that the other kids were careful and aware of him as he climbed the swingset.

Chris seemed a little more into me today too. Sometimes he looks at me like I'm a crazy nut. He let me push him onthe swing and when I wasn't doing i high enough he told me so. At one point, Chris and I were playing peek-a-boo by some bushes and I got the feeling he was urging me to chase him. He would run a few steps then stop and look at me then run a few more steps, stop and look at me, you get the picture. Running was the last thing I would have ever thought myself doing today but I figured, what the hell. He's only 3 so I gave chase. It was the best feeling! I got to run with someone who wasn't gonna leave me in the dust. Actually, he stopped every few minutes to let me catch him and tickle him. (Maybe he sensed that I would need to stop briefly to check myself.) Then we would run some more. I know how good interaction with others is for Chris. Today it was good for me too. He allowed me to do something I have been afraid to try for a while. Run. Even though I know how good I feel, there is always that fear that I'll do something to ruin it. Today that never occured to me. My only thought was, "How awesome is this! Chrissy's leting me chase him and catch him and tickle him!" The only thing I saw was Chris having a good time and laughing and interacting and playing. I was elated with that and with myself. I was so elated that it carried over several hours later when.....

"Daddy, you said we could go play tennis tonight." That was my son reminding my husband of his promise to go to the tennis courts down the road.

A couple of days ago when this came up I was horrified. Of course I would be expected to go. And I would be expected to participate. And all I could think was , "Yeah, I'm gonna be walking around the tennis courts. Great fun!"

Tonight, my mind-set was different. Mainly it was due to playing with Chris. I figured kids really aren' that great at tennis. Mackenzie only hits the ball once ever dozen times. I can just sorta stand there. No problem. Well, Connor was much better than I expected and he had me running.....literally RUNNING! I was no where near as active as I was the last time I was on a tennis court but I didn't have to stop and say, "Sorry kids. Mommy is in too much pain to play." I was able to keep up with them.

I'm trying not to think about tomorrow and if I'll be able to function. I'm just going to listen to the sounds of Chrissy's giggle and my son saying,"Jump higher Mommy!" as I remember the day that I finally stepped up my running game to play with a child.

Thank you Beth for sharing your son with me today.